International Corsage Winter Meeting 2008 in Nijmegen, NL

Genomics in the Policy Room

December 3, 2008 – 9.00 am to 5.30 pm

Registration now open!
The conference is free of charge.

Please, register by sending an email to:
Peter Stegmaier: stegmaier@society-genomics.nl and
Erwin van Rijswoud: e.vanrijswoud@science.ru.nl

Location: Radboud Universiteit, Faculty of Science, Huygensgebouw
How to get there:

  • In English: how_to_get_there
    (On campus map, Faculty of Science building is marked red)
  • In Dutch: bereikbaarheid
    (Op plattegrond Campus is het Science gebouw in rood aangegeven)
    • Download the program as a PDF.
      Download the abstract book as a PDF.



      Program
      9.00-9.20Registration & Coffee
      9.20-9.30Welcome [room 00.307]
      10.15Opening plenary: Cornelis van Bochove
      The Art of Lobbying Government for Research Funding
      Professor of Science Policy Studies, University of Leiden, NL, former Director Science Policy at the Netherlands Ministry of Education, Culture, and Science (1999-2007)
      10.15-10.30Break
      10.30-12.00Governance [room 00.310] Involvement I [room 00.308]
      Moderator: Gijs van der StarreModerator: Maud Radstake
      Christian Gilissen
      The Life of a GeNeYous
      Koen Dortmans
      How can Public Debates, Influence Policy Agendas, if at all?
      Martin Boeckhout
      Tracing Biobank Governance: an Issue-based approach
      Imme Petersen
      Debating Disclosure and Confidentiality in Clinico-Genomic Research
      Ronald Zwart
      Genomics Meets Policy-making: Views from a Life-scientist Turned Policy Maker Turned Industry-rep
      Erwin van Rijswoud
      Viruses and Experts in the Policy Room: Four Biographies
      12.00-13.00Lunch
      13.00-14.30Legal Implications [room 00.310] Making Futures [room 00.308]
      Moderator: Peter StegMaierModerator: Erwin van Rijswoud
      Jessica Wright
      The Sample/Data Distinction in Genetic Research Governance
      Jeanette Simmonds
      Reframing Biofuels Policy: Intersections between Energy Futures and Agricultural Futures
      Kate Attfield
      Does Research on the ‘Deaf Gene’ Reinforce Deaf Societal Identification?
      Yrrah Stol
      The Trend Analysis Biotechnology: Scientific Trends and Relevance
      Victor Toom
      How much Justice can Forensic DNA Profiling Handle?
      Daniel Puente Rodríguez
      The Territorialization of Genomics
      14.30-14.45Break
      14.45-16.15Involvement II [room 00.310]
      Moderator: Frans van Dam
      Roel Nahuis
      Why Genomics Implies a Transnational Reconceptualization of User Involvement
      Tilo Propp
      Report on a Scenario Building Exercise
      Steven Flipse
      LIFE to LEGO
      16.15-16.30Break
      16.30-17.30Closing Plenary [room 00.307]
      Joris Veltman:
      Genomics Research in Daily Practice
      Assistant Professor at the Department of Human Genetics; Principal Investigator Genomic Disorders & Head Microarray Facility Nijmegen, Department of Human Genetics-855, Nijmegen Centre for Molecular Life Sciences, Radboud University Nijmegen Medical Centre
      17.30Drinks

       

      In the “policy room” negotiations about how to deal with genomics affect the work of both life-scientists and social scientists accompanying genomics programmes: On the one hand, genomics is dealt with as an object of policy-making, most commonly in terms of (future) regulation & implementation, and in science policy.  On the other hand, policy-making is also on the agenda of those active in genomics. Important policy questions are, among others, the division of resources, the valorisation and patenting of research findings and the societal aspects of genomics.

      It is a a common feature of late modern times is that the sciences are not only subject to regulation and steering from governments and administration, but that scientists are also political on their own behalf – be it as citizens, researchers, managers of their research institutions, as vendors of marketable outputs of their research, or as “activists” and “lobbyists” for visions, public-private joint ventures, “appropriate” legal frameworks and capital. In many Western countries, particularly in the Netherlands and UK, the current science-governance culture, with its “politics of public talk”, has developed a stronger sense for putting public dialogue, transparency and democratic engagement regarding life-sciences and bio-technologies on a wider and sounder basis than some decades ago. In some cases, scientists feel that this is an explicit societal task for them, and they search for refined ways of creating spaces and means for such engagement. Science governance, as outlined above, is deeply intertwined with the way in which sciences and technologies shape cultures and societies in modern times, and vice versa – how social and cultural conditions influence technological and scientific developments. Navigating through such complex cultures of knowledges and practices is difficult, considering that different rationalities are at work in these cultures, leading to the dissolution of boundaries.

      We wish to shed light on this space of public science policy and start mapping it.  We do so by asking the participants of the meeting to communicate and deliberate on both practical experiences and systematic reflections regarding this genomics policy room.  We invite them to address some of the following issues:

      -          What are the genomics policy issues at stake today, which are likely to emerge in the near future?  What are the major thematic shifts compared to the past?

      -          How do social and economic aspects of genomics relate to each other in practice and in policy-making?  What is the role of industry in all this?

      -          How are societal & genomics policy issues put forward and how do they evolve?

      -          By which means and in which ways do researchers and policy-makers negotiate their perspectives and interests?

      -          What are the aims and objectives of typical encounters between researchers and policy-makers? What are the forums or spaces in which they meet?

      -          Which roles are taken in the policy room, and by whom?  To what extent are tasks and roles in genomics policy increasingly professionalized and controlled?

      -          Are there informal policy structures for genomics, evading formal policy-making?

      -          What is ‘forbidden’ in society & genomics policy in terms of taboos, forbidden areas, contested terrain, or even non-issues, and how are these situations dealt with?

      The meeting is designed as a forum for young (pre/post-PhD level) scholars at the junctions of science, social sciences/humanities and policy-making. For this meeting, we invite young:

      -          researchers from the field of science and technology studies, from ELSA and TA programmes studying the field of genomics

      -          life-scientists who are interested, in general, in policy-making related to genomics, or those who already have experience in that area

      -          policy-makers, concerned with genomics

      to share their concerns, perspectives and experiences.

      Our aim is to bring people together in such a way that both the global and the local natures of the genomics policy-making become concrete.  Therefore, we organize this meeting in Nijmegen in the middle of the science faculty where life-scientists carry out their research and from where they encounter the world of policy; from where, at the same time, the CSG coordinates its nationwide activities as an intermediary between genomics and society.

      For more information and to submit a proposal, please contact both

      Peter Stegmaier:stegmaier@society-genomics.nl and

      Erwin van Rijswoud:e.vanrijswoud@science.ru.nl

      The meeting is organized by Peter Stegmaier, CSG Nijmegen, & Erwin van Rijswoud, Department of Philosophy and Science Studies, Science Faculty, Radboud University Nijmegen in close cooperation with Eline Huisjes and Jurgen  Haanstra from GeNeYous (the Genomics Network for Young Scientists www.geneyous.nl/home.php) and  also with the Postgraduate Forum on Genetics and Society (PFGS, based in Exeter/UK;www.pfgs.org/pfgs). Corsage is a thematic cluster of GeNeYous.

      See also:www.society-genomics.nl and www.geneyous.nl/corsage/.

      With financial contributions by the Centre for Society and Genomics (CSG), and the Netherlands Graduate Research School of Science, Technology and Modern Culture (WTMC).